| Organizations Serving Twins and Other Multiples |
| Twins |
The Center for the Study of Multiple Birth
333 E. Superior St., Suite 464
Chicago, IL 60611
Phone: (312) 266-9093
Website: http://www.multiplebirth.com/
Email: Dr. Louis Keith, Director
Description: A nonprofit organization providing information and professional and parental referrals regarding pregnancy management.
|
National Organization of Mothers of Twins Clubs, Inc.
PO Box 438
Thompson Station, TN 37179-0438
Phone: (877) 540-2200 or (615) 595-0936
Website: http://www.nomotc.org/
Email: NOMOTC's Executive Office
Description: A nonprofit, nationwide network of parents of multiples clubs providing information and resources.
Publication: MOTC's Notebook (bi-monthly)
|
The Twins Foundation
PO Box 6043
Providence, RI 02940-6043
Phone: (401) 729-1000
Website: http://www.twinsfoundation.com/
Email: twins@twinsfoundation.com
Description: A nonprofit membership and research infomation center on twins with a national twin registry.
Publication: The Twins Letter (quarterly)
|
Twin Services, Inc.
PO Box 10066
Berkeley, CA 94709
Phone: (501) 524-0863
Email: twinservices@juno.com
Description: Publishes parenting and educational materials.
|
| Higher Order Multiples |
Mothers of Supertwins (M.O.S.T)
PO Box 951
Brentwood, NY 11717-0627
Phone: (516) 859-1110
Website: http://www.MOSTonline.org/
Email: Maureen@MOSTonline.org
Description: Provides information, resources and support network for families of triplets or more.
Publication: MOST (quarterly)
|
The Triplet Connection
PO Box 99571
Stockton, CA 95200
Phone: (209) 474-0885
Website: http://www.tripletconnection.org/
Email: tc@tripletconnection.org
Description: Information and support for expectant and new parents of larger multiples.
Publication: The Triplet Connection (quarterly)
|
| Top of Page |
| Twin Topics |
| Twin-Related Medical Issues |
Twin Hope, Inc.
2592 W. 14th St.
Cleveland, OH 44113
Phone: (216) 228-8887
Website: http://www.twinhope.com/
Email: twinhope@twinhope.com
Description: Provides support and information on twin-to-twin transfusion syndrome and other twin-related dieseases.
Publication: TwinLines (bi-annually)
|
Twin to Twin Transfusion Syndrome Foundation, Inc.
411 Longbeach Parkway
Bay Village, OH 44140
Phone: (440) 899-TTTS or (440) 366-6148
Website: www.tttsfoundation.org
Email: TTTSFound@aol.com
Description: Provides education and support to families diagnosed with TTTS.
|
| Twin Loss (Bereavement) |
The Center for Loss in Multiple Birth, Inc. (CLIMB)
PO Box 1064
Palmer, AK 99645
Phone: (907) 746-6123
Email: climb@pobox.alaska.net
Description: Provides support and information for parents who have experienced a loss of a multiple.
Publication: Our Newsletter: A Multiple Birth Loss Support Network (quarterly)
|
Twinless Twins International (TTI)
11220 St. Joe Road
Fort Wayne, IN 46835
Phone: (219) 627-5414
Website: http://www.fwi.com/twinless/
Email: Twinworld1@aol.com
Description: Provides peer support for twins of all ages (and their families) whose co-twin is deceased or terminally ill.
Publication: Twinless Times (quarterly)
|
| Top of Page |
| Twin Magazines and Children's Books |
Twin Pleasures Publishing
11220 St. Joe Road
Fort Wayne, IN 46835
Phone: (800) TWINS-BKS/ (800) 894-6257
Website: http://www.brownetwins.com/
Description: Books for and about twins.
|
Twins Magazine
5350 S. Roslyn St., Suite 400
Englewood, CO 80111-2125
Phone: (888) 55-TWINS
Website: www.twinsmagazine.com
Email: twins.editor@businessword.com
Description: Bi-montly magazine.
|
| Top of Page |
| DNA Testing |
Affiliated Genetics
PO Box 870247
Woods Cross, VT 84087-0247
Phone: (800) 362-5559
Website: http://www.affiliatedgenetics.com/
Email: btanner@burgoyne.com
Description: Provides mail order genetic test (DNA-STAR) to determine zygosity.
|
| Top of Page |
| Social Activities for Twins |
International Twins Association (ITA)
C/O Lynn Long or Lori Stewart
6898 Channel Rd. NE
Minneapolis, MN 55432
Phone: (612) 571-3022
Website: http://www.intltwins.org/
Email: ITAConvention@aol.com
Description: Social events for adult twins, annual Labor Day convention.
|
Twins Day Festival
PO Box 29
Twinsburg, OH 44087
Phone: (216) 425-3652
Website: http://www.twinsdays.org/
Email: Sandy Miller
Description: Annual festival for twins of all ages, usually the first weekend in August in Twinsburg, Ohio.
|
Twins World (Debra and Lisa Ganz)
PO Box 6056
New York, NY 10128
Phone: (800) RUTWINS or (212) 289-1777
Website: http://www.twinsworld.com/
Email: Billywonka@aol.com
Description: Owners of Twins Restaurant in New York city and authors of The Book of Twins.
|
| Top of Page |
| International Organizations |
| Organizations |
Australian Multiple Birth Association, Inc. (AMBA)
C/O The National Secretary
PO Box 105
Coogee, N.S.W. 2034 Australia
Phone: 011-61-49-46-8030
Website: http://www.amba.org.au/
Email: amba_national@yahoo.com.au
Description: Network of clubs for parents of multiples.
Publication: AMBA News (bi-monthly).
|
International Society for Twin Studies (ISTS)
Professor Nicholas Martin
Queensland Institute for Medical Research
Post Office, Royal Brisbane Hospital
Brisbane, QLD 4029, Australia
PO Box 105
Phone: 011-61-7-3362-0101
Website: http://www.ists.qimr.edu.au/
Email: kathE@qimr.edu.au
Description: Mult-disciplinary scientific organization.
Publication: Twin Research (quarterly).
|
Multiple Births Canada/Naissances Multiples Canada (MBC)
PO Box 234
Gormley, Ontario, Canada LOH IGO
Phone: (905) 888-0725 Fax: (905) 888-0727
Website: www.multiplebirthscanada.org
Email: office@multiplebirthscanada.org
Description: Parenting clubs and information, education and research.
Publication: Double Features (quarterly).
|
Multiple Births Foundation (MBF)
Professor Nicholas Martin
Queen Charlotte's and Chelsea Hospital
Goldhawk Road
London W6U.K.
Phone: 011-44-181-383-35191
Email: mbf@rpms.ac.uk
Description: Many services for parents and professionals working with multiples.
Publication: Multiple Birth Foundation Newsletter (quarterly).
|
New Zealand Multiple Births Association (NZMBA)
PO Box 1258
Wellington, New Zealand
Email: lizlake@xtraa.co.nz
Description: Parenting clubs and information.
Publication: NZMBA Newsletter (quarterly).
|
South African Multiple Birth Association
46 Lockwood Road
Erindale, South Aftrica 5066
Email: bodygear@iafrica.com
Description: Support to parents of multiple births.
|
Twins and Multiples Births Organisation (TAMBA)
2 The Willows, Gardner Road, Guildford, Surrey, England GU1 4PG
Tel: 00 44 1483 304442
Website: http://www.tamba.org.uk/
Email: enquiries@tamba.org.uk
Description: Information and support network for families with twins and other higher order multiples.
Publication: Twins, Triplets and More Magazine (quarterly).
|
| International - Twin Loss |
Lone Twin Network (LTN)
PO Box 5653
Birmingham B297JY
United Kingdom
Description: Support for twin loss.
|
| Top of Page |
| Other Topics of Interest |
| Bed Rest |
Sidelines
PO Box 1801
Laguna Beach, CA 92651
Phone: (949) 497-2265
Website: http://www.sidelines.org/
Description: Provides education and support for women acroos the U.S. (and their families) who are experiencing complicated pregnancies.
|
| Postpartum Issues |
Postpartum Support International
927 North Kellogg Ave.
Santa Barbara, CA 93111
Phone: (805) 967-7636
Fax: (805) 967-0608
Website: http://www.chss.iup.edu/postpartum/
Email: jhonikman@earthlink.net
Description: Provides information, education, and support for postpartum families.
|
Depression After Delivery, Inc. (DAD)
91 E. Somerset St.
Raritan, NJ 08869
Phone: (800) 944-4PPD
Website: http://www.behavenet.com/dadinc/
Description: Provides support, education, information, and referrals.
|
| Bereavement--Parent Support |
Centering Corporation
1531 N. Saddle Creek Rd.
Omaha, NE 68104-3696
Phone: (402) 553-1200
Fax: (402) 553-0507
Website: http://www.centering.org/
Email: center@centering.org
Description: Nonprofit publishing company provides bereavement literature. Free catalog.
|
Compassionate Friends, Inc.
PO Box 3696
Oak Brook, IL 60522-3696
Phone: (630) 990-0010
Website: http://www.compassionatefriends.org/
Email: National Office
Description: Nonprofit publishing company provides bereavement literature. Free catalog.
Publication: We Need Not Walk Alone (quarterly).
|
RTS Bereavement Services (formerly known as Resolve Through Sharing)
Gunderson Lutheran Medical Center
1910 South Ave.
La Crosse, WI 54601
Phone: (800) 362-9567 x 4747 or (608) 791-4747
Website: http://www.gundluth.org/bereave/
Email: Berservs@gundluth.org
Description: Provides information, resources and/or referrals to local support groups and education to health care professionals.
|
SHARE: Pregnancy and Infant Loss Support, Inc.
St. Joseph Health Center
300 First Capitol Dr.
St. Charles, MO 63301
Phone: (800) 821-6819
Fax: (314) 947-7486
Website: http://www.nationalshareoffice.com/
Email: share@nationalshareoffice.com
Description: Provides support for parents experiencing the death of their baby. Also provides information, education and resources.
|
| Psychological Services and Counseling |
American Association for Marriage and Family Therapists
1133 15th St. NW #300
Washington, DC 20005-2710
Phone: (202) 452-0109
Fax: (202) 223-2329
Website: http://www.aamft.org/
Description: Provides information and referrals to local areas.
|
American Psychiatric Association
1400 K St. NW
Washington, DC 20005
Phone: (202) 682-6000
Website: http://www.psych.org/
Description: Provides information and referrals to local areas.
|
American Psychological Association (APA)
750 First St. NE
Washington, DC 20002-4242
Phone: (202) 336-5500
Website: http://www.apa.org/
Description: Provides information and referrals to local areas.
|
| Top of Page |
| General Health Care |
| Asthma/Allergies |
Asthma and Allergy Foundation of America
1233 20th St. NW, Suite 402
Washington, DC 20036
Phone: (800) 7-ASTHMA
Website: http://www.aafa.org/
|
| Autism |
Autism Society of America
7910 Woodmont Ave, Suite 300
Bethesda, MD 20814-3015
Phone: (800) 3-AUTISM x150
Website: http://www.autism-society.org/
|
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892
Website: http://www.ninds.nih.gov/health_and_medical/disorders/autismshortdoc.htm
|
| Auto Safety |
Auto Safety Hotline
Phone: (888) 327-4236
Website: http://www.nhtsa.dot.gov/
Description: Sponsored by the Department of Transportation. Provides free information on car seats and auto safety for children.
|
| Breast-Feeding |
La Leche League International
PO Box 4079
Schaumburg, IL 60168-4079
Phone: (800) 525-3243 or (847) 519-7730
Website: http://www.lalecheleague.org/
Description: Information and support on breast-feeding and referrals to lactation consultants.
|
| Cancer |
National Childhood Cancer Foundation
440 E. Huntington Dr., Suite 300
PO Box 60012
Arcadia, CA 91066-6012
Phone: (800) 458-6223
Website: http://www.nccf.org/
Description: Information about childhood cancer.
|
| Cerebral Palsy |
United Cerebral Palsy Association, Inc.
1660 L St. NW, Suite £700
Washington, DC 20036-5602
Phone: (800) 872-5827
Website: http://www.ucpa.org/
|
| Childcare |
National Association of Child Care Resource and Referral Agency (NACCRRA)
Elaine, Rank, Director
1319 F St. NW, Suite 810
Washington, DC 20004
Phone: (202) 393-5501 x123 or (800) 570-4543
Website: http://www.naccrra.net/
Email: yvinci@naccrra.net
Description: Organization of community-based child care resource and referral programs for every state in U.S., Canada and England.
|
| Child Safety |
National Safety Council
1121 Spring Lake Dr.
Itasca, IL 60143-3201
Phone: (630) 285-1121
Website: http://http://www.nsc.org/
Description: Information on safety issues.
|
| Diabetes |
Juvenile Diabetes Foundation International
120 Wall St., 19th Floor
New York, NY 10005
Phone: (800) 533-2873
Website: http://www.jdf.org/
Email: info@jdf.org
Description: Information on diabetes.
|
| Emergency Preparedness |
Federal Emergency Management Assocation (FEMA)
PO Box 2012
Jessup, MO 20794
Phone: (800) 480-2520
Website: http://www.fema.gov/
Description: Information on disaster preparedness.
|
| Epilepsy |
Epilepsy Foundation of America
4351 Garden City Dr.
Landover, MD 20785
Phone: (800) EPA-1000 or (800) 332-1000
Website: http://www.efa.org/
Description: Information on children with epilepsy.
|
| General Health for Children |
American Academy of Pediatrics
141 NW Point Blvd.
Elk Grove Village, IL 60007-1098
Phone: (800) 443-9016
Website: http://www.aap.org/
Description: For information, request the "Parents' Resource Guide" for a listing of brochures.
|
| Hearing |
Hearing Help Line (Better Hearing Institute)
515 King St., Suite 420
Alexandria, VA 22314
Phone: (800) EAR-WELL or (800) 327-9355
Website: http://www.betterhearing.org/
Description: Information on hearing problems in children.
|
| Heart Disease |
American Heart Association
1710 Gilbreth Rd.
Burlingame, CA 94010
Phone: (800) AHA-USA1 or (800)242-8721
Website: http://www.americanheart.org/
Description: Information and referrals to cardiologists.
|
| Immunization and Health Screenings |
National Immunization Information Hotline
1600 Clifton Rd. MSE-34
Atlanta, GA 30337
Phone (English): (800) 232-2522
Phone (Spanish): (800) 232-0233
Website: http://www.cdc.gov/nip/
Description: Information on vaccine-preventative diseases.
|
| Learning Disabilities |
Learning Disabilities Association of America
4156 Library Rd.
Pittsburgh, PA 15234-1349
Phone: (412) 341-1515
Website: http://www.ldanatl.org/
Email: ldanatl@usaor.net
Description: Education and support for children with learning differences.
|
Orton Dyslexia Society
8600 LaSalle Rd.
Chester Buklding, Suite 382
Baltimore, MD 21286-2044
Phone: (800) ABCD-123
Website: http://www.interdys.org/
Description: Education and support for children with dyslexia.
|
| SIDS (Sudden Infant Death Syndrome) |
SIDS Alliance, Inc.
1314 Bedford Ave., Suite 210
Baltimore, MD 21208
Phone: (800) 221-7437 or (410) 964-8000
Website: http://www.sidsalliance.org/
Email: sidshq@charm.net
Description: Research and parent support for Sudden Infant Death Syndrome (SIDS).
|
Back-to-Sleep Hotline
2070 Chain Bridge Rd. £450
Vienna, VA 22182
Phone: (800) 505-CRIB or (800) 505-2742
Description: Information on prevention of SIDS.
|
| Vision |
American Foundation for Vision Awareness
243 N. Lindbergh Blvd.
St. Louis, MO 63141
Phone: (800) 927-AFVA or (800) 927-2382
Websites: http://www.afva.org/ and http://www.operationbrightstart.com/
Description: Information concerning children's vision health and development.
|
| Top of Page |
